Why this pocket guide exists
Gynecologic cancer care is changing rapidly—and thankfully, many W2W mentors have been cancer-free for years. This pocket guide reconnects us with the foundations of our mentor training while helping us stay familiar with treatments and experiences that may be different from our own.
Use it as a quick refresher before connecting with a mentee: to feel grounded, recognize the language she may use, listen with confidence, and offer support without stepping into the role of her medical team.
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🤝 The W2W core mission
We pair gynecologic cancer patients with trained survivor volunteers to share personal experiences, listen carefully, and build a safe environment of trust, thoughtful optimism, and empathy.
📋 Rules of the road & expectations
- Bi-weekly check-ins: Connect with your active match at least once every two weeks to remind her you are there.
- Interaction logging: Report a quick summary of every touchpoint—date, method such as text or call, and approximate duration—to the coordinator.
- No firm cutoffs: Matches ebb and flow naturally. If a relationship quietly dissolves as treatment ends, view it as a success: she has found her footing.
- Our community: Gather for support meetings, socials, and educational presentations covering medical updates and skills such as stress management, coping, and nutrition.
👂 Active listening & communication
- Pay attention and show it: Give undivided attention. Use silence deliberately; it can help a woman open up.
- Defer judgment: Let her finish before responding. Listen to understand—not to correct, compare, or solve.
- Tell your story succinctly: Keep your diagnosis summary brief so it does not overwhelm your mentee or shift the focus away from her.
- Ask what she needs: “Would it help most if I listened, shared part of my experience, or helped you write down a question for your care team?”
🔒 Essential boundaries
🟢 First-time diagnosis: grounding & pacing
Mentees may feel shell-shocked and look for a “finish line.” Focus on one day at a time and normalize the flood of paperwork, fear, waiting, and loss of bodily control.
🔴 Recurrent diagnosis: grief work & stamina
Mentees may feel angry, frightened, or betrayed by their bodies. The expectation of a quick finish line is gone. Avoid “You beat it once, you can beat it again.”
Care increasingly relies on molecular profiling—tumor features such as mismatch-repair status—along with stage, pathology, prior treatment, and the individual patient.
Immunotherapy
Some patients receive drugs such as pembrolizumab (Keytruda) or dostarlimab (Jemperli), sometimes with chemotherapy or another targeted medicine.
- What they may experience: fatigue, itching or rash, diarrhea, cough, or other new inflammatory symptoms.
Oral targeted therapy
Some women take an at-home medicine such as lenvatinib (Lenvima), often in combination with immunotherapy.
- What they may experience: cumulative fatigue, blood-pressure changes, diarrhea, appetite changes, mouth soreness, or tender hands and feet.
Treatment may include surgery and chemotherapy followed by maintenance therapy. Tumor and inherited genetic testing can help guide options.
PARP inhibitors
Some patients take an oral maintenance medicine such as olaparib (Lynparza), niraparib (Zejula), or rucaparib (Rubraca), depending on their situation.
- What they may experience: fatigue, nausea, appetite changes, and changes in blood counts that require regular monitoring.
Targeted infusions
Bevacizumab (Avastin) may be used during treatment or as maintenance for some women.
- What they may experience: blood-pressure changes, headaches, nosebleeds, fatigue, or monitoring for less common but serious problems.
Primary peritoneal cancer begins in the lining of the abdomen and is often treated similarly to epithelial ovarian cancer. A mentor’s own diagnosis may sound different even when parts of the treatment journey overlap.
Surgery, chemotherapy & maintenance
Treatment may involve tumor-reduction surgery, platinum-based chemotherapy, targeted infusions, or oral maintenance therapy, depending on the individual plan.
- What they may experience: abdominal discomfort or swelling, appetite changes, bowel changes, fatigue, neuropathy, and uncertainty about a cancer name many people have never heard.
Depending on stage and tumor features, care may involve surgery, radiation with chemotherapy, immunotherapy, targeted therapy, or combinations of these.
Chemoradiation & brachytherapy
- What they may experience: fatigue, diarrhea or bladder irritation, pelvic discomfort, skin changes, and the emotional intensity of internal radiation procedures.
Immunotherapy and targeted treatment
Some women with persistent, recurrent, or metastatic disease receive treatments such as pembrolizumab or other newer combinations when appropriate.
Treatment often centers on surgery and may also include radiation or chemotherapy. Plans vary with tumor size, location, lymph-node findings, prior treatment, and overall health.
Recovery and body changes
- What they may experience: wound care, swelling or lymphedema, discomfort with sitting or walking, urinary changes, and concerns about sexuality or body image.
Vaginal cancer is rare. Treatment may include radiation, brachytherapy, surgery, chemotherapy, or a combination based on the type, location, and stage.
A rare and private diagnosis
- What they may experience: pelvic symptoms, fatigue, bowel or bladder irritation, changes in sexual function, and loneliness from rarely meeting someone with the same diagnosis.
When to hand it back to the care team
If a mentee asks what a symptom means, whether she should change a medicine, or whether a treatment is right for her, help her contact her oncology team. For urgent or severe symptoms, follow the program’s escalation process and emergency guidance.
Medicine changes quickly. Drug examples are included only to help mentors recognize language they may hear—not to suggest treatment.
Mentor Contacts
Search the current peer mentor directory, then tap a name to reveal available contact details. The directory is stored in the downloaded guide and remains available offline.
No mentors match that search. Try a name, email, or phone number.
Peer mentor details are separate from the program-level contact below. Please distribute this guide only through the program’s controlled mentor channels.
Mentee Questions
Share questions or topics you’re hearing from mentees. Please don’t include names or any details that could identify the person.
For Dara and the Northwestern Woman to Woman team
This shared board is a proposed way to collect the questions and topics mentors are hearing between quarterly meetings. Mentors can add an item and read the running list; Suzy can copy or share the board before a meeting. This note is for review only and will be removed before the guide goes live.
Add to the board
Post a question or topic so other mentors can read what the group is hearing.
What mentors are hearing
This is a running board for mentors to read. There are no replies or answers inside the guide, and posting something doesn’t mean it will be answered or medically reviewed. Before quarterly mentor meetings, Suzy can copy or share the board with Dara so the team can discuss whatever seems useful.
Help & Contact
For help saving the guide, open the “Save this guide” panel near the top of the Mentor Guide.
Woman to Woman program contact
Email W2W@nm.org.
